I shared this on my Facebook page, but I thought this might be a
better forum. I can share my progress and keep everyone updated who is
interested without subjecting those who are not to the nitty gritty
details.
As many of you know, I have been
struggling with my health for quite some time. It is only recently that
I have started down the road that will give me the answers I am
seeking. The doctors I had been seeing were providing me no answers, so I
decided it was time to get some second opinions. The incompetence,
ignorance and general apathy about my concerns from my doctors is
absolutely astounding.
My mother has celiac
disease. Since it is hereditary and I am recently exhibiting some
symptoms, I decided to pursue it further. Her gastroenterologist
recommended my sister and I get tested, since it is hereditary and
sometimes can be "invisible." So right after her diagnosis (this is
going back a few years now), I went to my primary doctor and saw one of
his partners to inquire about the blood test to determine if I had or
was at risk for Celiac disease or a gluten intolerance. After much
coaxing and arguing, I finally convinced her to run the test- which she
told me came back negative.
I also decided it was time to go back to the reproductive endocrinologist (RE). My PCOS symptoms are completely out of control. My regular OBGYN seems to think there is no problem with me having 57-69 day cycles, even when I am on birth control pills, despite my pleas to run some tests because I feel something isn't right. So on top of the plethora of tests she is running (thyroid, prolactin, estrogen, progesterone, testosterone, as well as tests for possible insulin resistance), she did an ultrasound where it was discovered I have a cyst on my right ovary about the size of a small clementine. I am working closely with the RE to prevent it from growing any further and hopefully get it to go away completely.
To say I am frustrated by the incompetence of both my primary doctor and my OB is an understatement, but I can't be dwelling on that right now. I need to focus on working with these two specialists (and probably a nutritionist) to get my health back in order.
I share this with you to encourage you to be your own advocate for your health. Doctors are not perfect. Follow your intuition. Know your body, and don't stop looking for answers until you find out what you need to know. I've known for months something wasn't right, but I couldn't find a doctor to listen to me. Now I have 2 wonderful doctors who are working with me to find the answers I need. Words cannot express how much I needed to hear "You absolutely have every right to be concerned, and we will get to the bottom of this." after hearing "You're fine." "It's normal." "Don't worry so much." and so on and so forth.
Thank you for all the prayers and support. I will update as I find more things out!
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